Thursday, June 9, 2016
Oh.
Guys, I'm getting real sick of cancer.
Thanks to aspirin in her system they can't biopsy until late next week, so for right now we're basically all trying and failing really hard to pretend that everything is still normal. We're all going forward with our original weekend plans, desperately gripping the illusion that we held so easily on Wednesday morning, and watching with rising panic as it dissolves into nothing.
I cried a lot yesterday.
Everyone is trying not to think about the radiation and chemo that will start next month, right after we come back from a week of pretend vacation at the beach. I am trying really hard not to think about how she might never hold the grandchildren that she wants so desperately to meet and love. There's talk of moving our wedding forward. She wants us to make sure we visit before her biopsy next week--the unspoken reason being that she fears she may never wake from it. This is the same cancer that killed her mother.
I don't know how to act. I'm not sure any of us do.
Thursday, May 7, 2015
Post-wallow
Update: getting the fuck out of bed made me feel quite a bit better. And somehow today (or at least this evening) I've been doing a better job of not withering under the weight of all the scary things in my life that I can't control. Hard to say whether that's health or denial, but for now I'll take what I can get.
On another note, this just happened.
Marie: I am lying around in a towel and I just found a spider crawling on my inner thigh. Sweet dreams.
Ian: I just drank a gnat with my medicine. Saw it right as I was gulping.
Marie: high five.
Tuesday, November 4, 2014
Wanting
This post is one that wanders, according to my custom.
It's a gorgeous night tonight, and somehow walking under the nearly full moon made me start to think about what I want.
And what I want is to do what I want. Just me. No compromising or making nice, which feels as natural as breathing. And so when I daydream, I daydream about being alone.
I want to spend my days writing and walking by the water, rising early and drinking coffee in sunlit rooms (built to bring the outside in), staying up late under the stars, reading poetry, doing yoga. That's my most persistent daydream. The daydream of my stilted, crumbly heart.
Of course, there are others. I want--perhaps on principle--to be a person who welcomes others into her home. The kind of woman my great aunt was, who hosts missionaries and refugees, who invites people to dinner, who opens her home and heart to those in need.
I also want to move in with my friend Kelly. I want to treat my car nicely, as it deserves to be treated: get her all fixed and tuned up, clean her out, paint her pretty colors with rustoleum. I want...hmm. I want to be more of a doer, and less of a killer-of-time. I can kill time like it's an Olympic sport I've been training for all my life, and it's shameful, wasteful, sickening. It is not life-giving. I am learning, slowly, slowly.
And today (or at this point in the evening, yesterday) was my three-year anniversary with Ian. And I want unfair things of him. Or are they unfair? Maybe unfair for me to ask, or expect, or maybe "unfair" is a meaningless term here. But:
Sometimes I want to marry him. Is it, would it be settling? Marriage is not something I desperately want right now. I don't walk around feeling overwhelmed with lovey fuzzies. I'm not consistent in my feelings and I am often uncomfortable with them. But at times I do feel the lovey fuzzies. And in some ways we balance each other quite well. And in some ways we drive each other nuts. Am I supposed to wait for or find someone who makes me feel lovey fuzzies more consistently, more confidently, or what?
Regarding nuts: I am, in many ways, quite independent. I do not always respond well to advice, or to others' expressions of concern for my safety. I also don't like to plan things. Typically I'd rather wing it. Also I am unbelievably forgetful. All that drives Ian nuts, and still he graciously acts as my personal reminder service on a regular basis.
Here's what drives me nuts: Ian is not very independent. I don't mean to imply that he is emotionally dependent, but rather that he likes to do things together, and make decisions together, and sometimes those things are hard for me. He also likes to plan things down to the most minute details, which I find tiresome (but which I admit is a good quality). The downside there is that he is not comfortable with much spontaneity, and that is difficult for me. Lastly, anxiety. He is working with it, and working hard. Still, wrong as I may be, I have been unable to escape the idea that anxiety is the king of Ian's life. Because of that idea or fact or whatever it is I become irritable, angry, condescending, demanding, and sometimes mean, and that needs to stop one way or another.
More importantly than the way we drive each other nuts though is the way we communicate. There is plenty of friction in our relationship--there is a lot we don't have in common--but we go out of our way almost daily to better understand ourselves and one another. I've never had a relationship with communication this good, and I definitely can't take the credit here. Every step of the way, this man has asked questions, communicated his feelings and frustrations, and, when I finally started talking, listened to what I had to say. We often have trouble understanding one another; for example, I strongly suspect that the phrase, "life giving," would have no meaning for Ian. And that upsets me because I want the things that are important to me to be important to everyone I care about. I want Ian to believe in the God I believe in, and to feel the connections and the joys I feel at the same moments I feel them*. But isn't that life? As difficult as it is for me to grasp, life is different for everyone. The best we can do is try our best to bridge the gaps.
*why? Because I'd feel connected? Because I'd believe in his depth of emotion? Because I feel that I'm "right," and I want him to be right too? I don't know. There is a story I've heard about a child with autism who had trouble grasping the idea that everyone had a different point of view, and everyone had a different experience of the world. Sometimes I feel like that child.
Monday, June 11, 2012
Two Weeks
I turned in my written resignation today, which is a little bit terrifying, but I am fairly certain that it is the right thing to do. Probably more than fairly certain, but it is difficult not to second-guess when the prospect of being jobless is as scary as it is. I think, though, that if I am responsible about getting enough sleep and taking my vitamins and watching my attitude/time management, getting a new job (or finding enough tutoring clients, which amounts to the same thing only probably better) shouldn't be too big of a deal. We'll see how it goes.
For now though, I need to tie up loose ends and finish these two weeks, and then I think I'll be heading out to California to visit my cousin Pierce. She's lived out there for ages and I've never been, and she'll probably be moving back East soon, so now seems like a strikingly good time to go. She's near a few other sets of cousins too, so hopefully I'll get several different visits in while I'm there.
Once I'm back: beach with Ian & co.
Saturday, June 9, 2012
What's Going On
I may not have mentioned that I've moved into this place with my best friend. Most days I love it. I love having my own space, I love having a washer/dryer literally inches from my bedroom door, I love having a kitchen stocked with things that I bought, etc. I love that we're walking distance from the river, and I love that some nights when I drive home, the air is swimming with fireflies.
I thing I have mentioned that I've been working at this daycare-type place, but it isn't really for me. I've told them that I want to leave, but have not officially put in my two weeks' notice. I don't have another job yet. Some moments this seems incredibly reckless and misdirected; other moments it seems reasonable and necessary. I am not the person they want or need for the program, though I know that better than they do. They are not a program I want or need to be a part of. It plays up my weaknesses and does not utilize my strengths, and possibly more importantly, it does not help or encourage me to move toward my goal, which is to be a counselor/therapist. I will miss the children, though.
I didn't get enough sleep last night, and I woke up feeling discouraged and somewhat depressed. Floundering a bit, where earlier in the week I felt confident. I need to remember how important it is for me to make sure that I don't blow off my sleep schedule, as has been my habit for almost my entire life. When I do, my performance and my mental health suffer. And my attitude suffers. And attitude is everything.
I was browsing Pinterest a week or two ago and saw a link to a video of a commencement speech delivered by Neil Gaiman, who is one of my favorite authors. He's a rock star in my book, and he seems like a pretty wise guy. Toward the end of the speech he said that a woman he knew had called him once, and asked how he thought she should go about doing something that she considered to be quite difficult. He told her to pretend that she was a person who was capable of accomplishing her goal. It can be difficult for me to remember to pretend that way, and it can take some energy, but honestly, this is some of the best advice I have ever heard, and it has been helping me greatly. Attitude is everything.
About Ian: he's not perfect, we don't always see eye-to-eye, and like just about every other relationship I've ever been in I'm not 100% sold, but he is pretty awesome in a lot of ways. He is caring and funny and sarcastic, complimentary and generous, forgiving and flirtatious and attentive. And I really appreciate those things.
But back to the job issue: probably tutoring would be wise for me to get back into. I'm also looking for flexible hourly positions that would make it somewhat easier to a) hold multiple jobs, should I so choose, and b) take classes. Not that I know what I'm doing AT ALL when it comes to researching and applying to graduate schools. So if anyone knows of good companies to work for, or if anyone has any advice re: higher education, feel free to let me know.
Monday, March 19, 2012
I ought to be in bed
But yesterday I was so worried that she might not be able to come that I made Ian sit and listen to the whole saga of her transportation attempts on our way home from the beach. (By the way, we went to the beach with his friends.) And today when came home from work and saw her I danced over and hugged her and she started laughing, because I looked so happy. We eventually took Miley for a walk, and when we got to the creek at the bottom of our hill, we stopped to listen to the water and the peeping frogs, and then we sat, and then we lay in the dirt and looked up through the trees and the stars, and she took and held my hand in silence, and I was so grateful for the place and the moment and for time with my sister that I wept a little, in silence.
Monday, March 12, 2012
Look, I never said I was cool.
And that seems like a totally reasonable and obvious thing to say, I guess, but I was floored. I was so floored that I just keep talking about this story. I'm honestly getting a little sick of it, but I keep thinking about it every so often. Because it just doesn't work that way. I was writing about it the other day, in the van, on the back of some papers from work. Here's part of what I said:
"It is difficult to explain and a little embarrassing to admit how shocked I was. In truth I am actually sickened by the thought of 'the door closing' on Alkulana being a part of my life. How could I explain that sometimes a place, a community, an adopted family will get under your skin, and that Alkulana has seeped into my bones? I feel like Wolverine, except that instead of adamantium, my skeleton has been infused with the love of Christ." Because of camp. I love the way I do (and, considering the person I could be, I think I love rather well) because of this community.
Probably nobody cares who hasn't been there, and that's okay with me I suppose. Why should the cool silk of the creek at midnight hold any sway over you? Why should you feel warmed by the early morning sun swimming through the mist and touching down on our daily prayer circle? By the smell of campfire on all your hoodies? By the blissful quiet of rest hour or the welcome relief of a raucous late-night kitchen after staff meeting?
I can't make him, or you, understand. That's how life is. But I hope nothing ever changes the fact that when I am at my worst, when everything is unbearable and I can't find any light, I am sustained by this. It seems ridiculous. (Maybe it is ridiculous.) I know that. But those memories feed me when I am starving. I don't plan to put them away any time soon.
Friday, March 9, 2012
An epiphany in the morning
I feel like major emotional crises (that breakup, for me, would fall into that category) are like landslides. Or they're massive floods of emotion that cause landslides. Everything you've worked so hard to build is washed completely away, and you're left in the valley, drowning in muck and wreckage and sewage. And then, hopefully, eventually things start to dry out, and you can finally start to climb again, to build again, to painstakingly carve stairs step by step back into the side of the mountain. And at first it's the most impossible task in the world, but it gets easier. You learn to build. You get stronger. You find a rhythm. And one day you realize that life is moving forward, and you are moving forward, and things are okay.